131 research outputs found
Symptom Burden, Survival and Palliative Care in Advanced Soft Tissue Sarcoma
Introduction. The symptom burden and role of palliative care (PC) in patients with advanced soft tissue sarcoma (STS) are not well defined. Methods. This study retrospectively reviewed both symptoms and PC involvement in patients known to an STS referral centre who died in one calendar year. Results. 81 patients met inclusion criteria of which 27% had locally advanced disease and 73% metastases at initial referral. The median number of symptoms was slowly progressive ranging from 2 (range 0–5) before first-line chemotherapy (n = 50) to 3 (range 1–6) at the time of best supportive care (BSC) decision (n = 48). Pain and dyspnoea were the commonest symptoms. Median overall survival from BSC decision was 3.4 weeks. 88% had PC involvement (either hospital, community, or both) with median time from first PC referral to death of 16 (range 0–110) weeks. Conclusions. Patients with metastatic STS have a significant symptom burden which justifies early PC referral. Pain, including neuropathic pain, is a significant problem. Dyspnoea is common, progressive and appears to be undertreated. Time from BSC decision to death is short, and prospective studies are required to determine whether this is due to overtreatment or very rapid terminal disease progression
The Transfer of Knowledge from Large Organizations to Small: Experiences from a Research Project on Digitization in Wales
Περιέχει το πλήρες κείμενοThis paper describes a research project
being undertaken for a Masters of Philosophy degree
which investigates how knowledge can be transferred
from large organizations to small ones. The area being
investigated involves the digitization of photographic
collections held by cultural memory institutions in
Wales. The researcher has spent time learning about
digitization and digitizing two collections at the
National Library of Wales. From this a toolkit has been
developed and is being tested by digitizing a small
archive of photographs at the Centre for Performance
Research at Aberystwyth University. The research is
being funded by the Knowledge Economy Skills
Scholarship (KESS) programme, which aims to build
knowledge and skills in the ‘convergence’ area of
Wales. Supervision is being carried out by academic
staff at Aberystwyth University
Symptom Burden, Survival and Palliative Care in Advanced Soft Tissue Sarcoma
Introduction. The symptom burden and role of palliative care (PC) in patients with advanced soft tissue sarcoma (STS) are not well defined. Methods. This study retrospectively reviewed both symptoms and PC involvement in patients known to an STS referral centre who died in one calendar year. Results. 81 patients met inclusion criteria of which 27% had locally advanced disease and 73% metastases at initial referral. The median number of symptoms was slowly progressive ranging from 2 (range 0-5) before first-line chemotherapy (n = 50) to 3 (range 1-6) at the time of best supportive care (BSC) decision (n = 48). Pain and dyspnoea were the commonest symptoms. Median overall survival from BSC decision was 3.4 weeks. 88% had PC involvement (either hospital, community, or both) with median time from first PC referral to death of 16 (range 0-110) weeks. Conclusions. Patients with metastatic STS have a significant symptom burden which justifies early PC referral. Pain, including neuropathic pain, is a significant problem. Dyspnoea is common, progressive and appears to be undertreated. Time from BSC decision to death is short, and prospective studies are required to determine whether this is due to overtreatment or very rapid terminal disease progression
Symptom Burden, Survival and Palliative Care in Advanced Soft Tissue Sarcoma
Introduction. The symptom burden and role of palliative care (PC) in patients with advanced soft tissue sarcoma (STS) are not well defined. Methods. This study retrospectively reviewed both symptoms and PC involvement in patients known to an STS referral centre who died in one calendar year. Results. 81 patients met inclusion criteria of which 27% had locally advanced disease and 73% metastases at initial referral. The median number of symptoms was slowly progressive ranging from 2 (range 0-5) before first-line chemotherapy (n = 50) to 3 (range 1-6) at the time of best supportive care (BSC) decision (n = 48). Pain and dyspnoea were the commonest symptoms. Median overall survival from BSC decision was 3.4 weeks. 88% had PC involvement (either hospital, community, or both) with median time from first PC referral to death of 16 (range 0-110) weeks. Conclusions. Patients with metastatic STS have a significant symptom burden which justifies early PC referral. Pain, including neuropathic pain, is a significant problem. Dyspnoea is common, progressive and appears to be undertreated. Time from BSC decision to death is short, and prospective studies are required to determine whether this is due to overtreatment or very rapid terminal disease progression
The Transfer of Knowledge from Large Organizations to Small: Experiences from a Research Project on Digitization in Wales
https://thekeep.eiu.edu/lib_annual_reports/1000/thumbnail.jp
An interprofessional day of hi-fi simulation of Family and Domestic Violence with midwifery students and social work students
An interprofessional simulated learning day with standardized patients (hired actors) was held for student midwives and student social workers in a simulated hospital ward in response to a situation involving Family and Domestic Violence (FDV). Two scenes were pre-written and an unplanned scene was also improvised. Initial evaluation of the session was conducted by questionnaire, with capacity for quantitative responses using a five point Likert Scale and qualitative replies to questions via textbox. A focus group with the six midwifery students offered an opportunity to provide feedback the following week. Overall findings suggest that students found the simulation a realistic, valuable and safe experience. Student midwives felt less prepared than the social work students and some were confronted by the realism when faced with a scene of FDV; all valued the interprofessional experience and found it useful to discover the role of their professional counterparts in responding to FDV
What cost components are relevant for economic evaluations of palliative care, and what approaches are used to measure these costs? A systematic review
BACKGROUND: It is important to understand the costs of palliative and end-of-life care in order to inform decisions regarding cost allocation. However, economic research in palliative care is very limited and little is known about the range and extent of the costs that are involved in palliative care provision. AIM: To undertake a systematic review of the health and social care literature to determine the range of financial costs related to a palliative care approach and explore approaches used to measure these costs. DESIGN: A systematic review of empirical literature with thematic synthesis. Study quality was evaluated using the Weight of Evidence Framework. DATA SOURCES: The databases CINAHL, Cochrane, PsycINFO and Medline were searched from 1995 to November 2015 for empirical studies which presented data on the financial costs associated with palliative care. RESULTS: A total of 38 papers met our inclusion criteria. Components of palliative care costs were incurred within four broad domains: hospital care, community or home-based care, hospice care and informal care. These costs could be considered from the economic viewpoint of three providers: state or government, insurers/third-party/not-for-profit organisations and patient and family and/or society. A wide variety of costing approaches were used to derive costs. CONCLUSION: The evidence base regarding the economics of palliative care is sparse, particularly relating to the full economic costs of palliative care. Our review provides a framework for considering these costs from a variety of economic viewpoints; however, further research is required to develop and refine methodologies
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